Rett syndrome causes profound and multiple physical and communication disabilities in mainly females, from the age of one. The child survives but has a severe disability.
It is a rare neurological disorder caused by genetic mutation, but very rarely hereditary, which could happen to anyone.
Rett UK aims to minimise the impact of the condition and maximise the potential of people living with Rett syndrome.
They provide professional support, information and advice to families from diagnosis throughout their lives.
Registered no: 1137820.
If you would like any help or advice, please ask a question on the enquiry form or chat with our helpdesk.