Why fundraise for Max Appeal
Max Appeal ensures every person with DiGeorge syndrome (also known as 22q11.2 deletion syndrome or Velocardiofacial syndrome (VCFS)) leads an independent, prosperous life through comprehensive support services, community events, and research initiatives. DiGeorge syndrome is a condition present from birth that can cause a range of lifelong problems.
- The genetic condition is caused by a deletion in the q11.2 region of chromosome 22.
- Symptoms and severity can vary widely among individuals, even within the same family.
- It can affect multiple parts of the body.
DiGeorge syndrome can cause a range of problems. While symptoms vary, some common features include:
- Heart defects
- Immune system problems
- Distinctive facial features
- Learning difficulties
- Speech and feeding problems
- Cleft palate or other palate abnormalities
Use of fundraising
Max Appeal demonstrates a strong commitment to channeling donations directly into charitable activities. Recent fundraising successes, like the Great North Run 2024 raising £17,000, showcase their ability to mobilize support effectively.
The impact of £250
A £250 donation can:
- Provide essential resource materials for newly diagnosed families
- Contribute to critical research initiatives
- Support community engagement events like “22Q at the Zoo”
- Help develop educational support packages for schools and healthcare providers
Your fundraising efforts join a network of passionate supporters all making a real difference in the lives of those affected by DiGeorge syndrome. By choosing Max Appeal, you’re not just raising money – you’re empowering a community and changing lives.
Registered charity number 1088432